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Starting Again

Starting Again

Hello everyone & welcome to my page. Thank you for taking the time to read my story. On March 5th 2018, I suffered a severe traumatic brain injury.  After a month in hospital, the doctors diagnosed me with the following illness and injury. From the fall, I burst my ear drum and had a hearing impediment in my right ear. My frontal lobe was subject to significant damage, with 3 skull fractures and internal bleeding. My vestibular system became impaired; my body could not recognise its position in space, and so all movement seemed disorientated and dizzy. I lost nerve function in my face (facial palsy), and my brain connectivity reduced to 10%. The neurones were not completing their paths and I was in, somewhat, a vegetable state. I struggled to acknowledge what happened to me. I lacked insight and responsiveness to auditory conversation and instruction. I couldn’t recognise family or friends, and didn’t comprehend simple life practices. Amnesia began with 5 second lapses in memory, whereby my brain then restarted, like a button pushed on a remote. In my mind, seen through my eyes,  a walk to the toilet was the equivalent of climbing Everest. An impossible new task which caused life changing fear and anxiety. I felt helpless. Social interaction and awareness became limited, causing me to behave oddly in various, usually simple, scenarios. I suffered from Aphasia; an impairment of language, affecting the production or comprehension of speech and the ability to read or write. I looked to doctors with confusion and fear, searching for the appropriate answer to the question, 'are you hungry?' scared that I would say the wrong answer...I simply, didn’t understand. My brain registered all experiences as if I were doing them for the first time, and with that I briefly lived my days being scared of everything, not knowing what each situation would present. All facets of life felt foreign until I re-learned them again. I slowly became more comfortable, and my confidence improved with each small stepping stone. Clare, my neuro-pyschologist, has enabled me to process this event, to manage grief and find silver linings. She has been a big rock in my journey, but bigger rocks are always found closer to home.  I owe so much to Cristina, my family and friends; for their strength and support, I am eternally grateful. With all my senses near-broken, and my mental depression amounting, during my rehabilitation, I found beauty in one thing. This one thing kept me going.  Nature. With a camera, unexpected tears of happiness would form. They formed when I captured nature it in all its mesmerizing glory. Not knowing the context of modern society, I clung to the natural presence of trees, sun and sea, as that is the part of the world which my body naturally understood, without the need for brain connectivity. I was drawn to nature. I cannot explain it to you, without sounding somewhat strange, but with everything that happened to me, my brain lost, my thoughts lost, unable to recognise the world, nature and photography made me feel, it made me feel...protected. It made me feel safe. It made me feel connected to something, when my connection to people felt lost. I would venture outside and take pictures of landscapes, animals, and life, all in its simplest form. Photography became, well... it became my saviour. My medicine. Taking myself out of our modern society’s self-constructed problems and troubles, I found, and find, peace and comfort in my natural surroundings; a place that I can really call home, a humans first habitat, barren of modern mental pressures and illness. Photography is, to put bluntly, my healer.   I understand that people may not be able to empathise with this cause and understand what this camera represents for me, and that is okay, for it is not a common injury which we have all experienced, like a papercut or flu. You don’t have to empathise, but just know that the words I type mean a lot to me, as silly as they may sound. Photog

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£1,110

27%
Love2Lexy

Love2Lexy

Hello and thanks for coming by. My name is Lexy, and the adorable pup by my side 24/7 is Jaxx.  About three years ago I was diagnosed with a rare genetic condition, called Ehlers Danlos Syndrome. I have the most common type of Hypermobile EDS. It's a horrible, multi-systemic condition that wreaks havoc on the sufferer, and can affect any number of things throughout the body. For me, personally, I experience a lot of pain and joint subluxations (partial dislocations) and often, full dislocations.  While living in the US I had sought treatment to find out why my neck was so constantly painful, why I had trouble supporting my head upright, and why I almost constantly had a headache, that was only relieved by laying down. While in the Us, I was also diagnosed with Postural orthostatic tachycardia syndrome, Chiari malformation and we still suspect Mast Cell activation syndrome.  With few answers, and a need to return home and escape my troubled marriage, I left the US. Upon returning home, shortly before Christmas, I started slipping in and out of consciousness. It was so quick and successive that I was unable to tell anyone what was happening or reach out for help. My blood pressure was tanking but we did not know why. I sought answers from doctors, neurologists and neurosurgeon team at Queen's square, I was sent for a supine MRI upon which they told me that I did have Chiari but that it was ''not symptomatic'' because of it's size.  Initially, I accepted these answers, why would they not be correct? But my condition declined further and after an incident with my University bed collapsing, I was left unable to lift my head from my pillow due to extreme pain and dizziness. I almost missed Christmas with my family as I was unable to travel for a two week period leading up to Christmas day.  I was frustrated and desperate to know what was going on. I emailed a doctor in Spain, a specialist within our EDS community and found the price for a consultation. In between raising that money and sending my imaging off, I started falling unconscious when lowering my head down. I attended the A&E in Barnet, where I was discharged because they couldn't work out why this was happening.  By the time I sent my images and received my report, my speech was impaired, fatigue was running rampant, and the period of time in which I can remain upright has greatly lessened (about two hours at a time without a break). My gait, breathing and eyesight are all impaired, sporadically too.  I opened the report expecting a few levels of my neck needing to be fused, what I read was shocking. My neck is very unstable, I have little to no spinal fluid flow. I was diagnosed with Chiari malformation and recommended a decompression surgery for those symptoms and the csf flow, Cervical cranial instability and Antalo-axial instability. What this means for me is that I need my whole neck fused, hard.  On the 8th of July I flew out, accompanied by my best friend, to Barcelona to have further imaging and meet with my surgeon. It was confirmed that I do need these surgeries urgently, or I will simply continue to decline at the rapid rate I have been.  I have been given a rough estimate of 50,000 gbp, and understandable, this isn't change I can grab from the sofa cushions, I need help to save my life. That isn't easy to say. Things have deteriorated rapidly since the bed incident, slipping in and out of conciousness, I lost control of my bladder and my spo2 stats drop frequently to below 90. I am terrified of how far I can decline, and what my body can come back from.  So please, if you have anything to spare, please consider helping.  Frequently asked questions: - Why wont the NHS fund this - The NHS have a few reasons, the first is that they don't like operating on people with connective tissue issues, due to the potential complications and risks we pose. They also dispute, despite numerous success stories, that the surgery is beneficial. They don't have a surgeon qualified

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Izzi‘s hair donation

Izzi‘s hair donation

Hi there! My name is Isabella Curran and I am 13 years old. Because life is sometimes weird and things unexpected happen, I became aware of many things... one of them is cancer. My mum was disgnosed with breast cancer and she had to undergo chemotherapy. One of her biggest fears besides other stuff about the treatment was that she would lose her hair. She always says: “If you look sick, you feel sick.” This is why I have decided to donate my hair towards a wig for a child who has lost his or her hair due to cancer. I want to help them regain their confidence and make them feel healthy, beautiful and good again. The charity I decided to send my hair to is Little Princess in the UK.   At the same time, I would like to raise money for “Verein zur Krebsforschung in der Frauenheilkunde” (yeap, its a mouthful unless you speak German) in Innsbruck, Austria. It is a cancer research centre which is also part of the hospital where my mum did her chemotherapy. Against all odds, and because of one of their studies in which she participated in, my mum kept most of her hair. I can tell you, she looks great and feels so much better for it! The Verein zur Krebsforschung in der Frauenheilkunde is determined to develop a blood test that can detect malignant tumours at an early stage so people may not have to go through aggressive chemotherapy and lose their hair. They are also working on the development of anticancer drugs and new surgical methods in cooperation with other European and American cancer researchers. Unfortunately, public funding in Austria is insufficient so they have to rely on donations like most research institutions. I hope you can help me reach my goal to raise awareness of how early detection of cancer can help save lives and maybe, even remind yourself to listen to your body and do your check-ups regularly. Every penny helps in the global fight against cancer! With just 1-click you can help. * Give however much you want* All payments are 100% secure* Why Leetchi.com? It's easy & transparent!Thank you!

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€210

Jim's FtM mammectomy

Jim's FtM mammectomy

Hello everyone & welcome to this money pot!With just 1-click you can donate to a cause* Give however much you want* All payments are 100% secure* Why Leetchi.com? It's easy & transparent!   This introduction being done by leetchi.com, let's talk about why I have created this money pot.I will first of all define the key words and then introduce myself and my project. This description will have a English version and a French version. EN: Mammectomy: It is the medical term for the surgical removal of one or both breasts, partially or completely.FR : Mammectomie : Terme médical pour une ablation d'un ou des deux seins, partiellement ou complètement. EN: FtM (Female to Male): individual identifying as male who was assigned female at birth.FR : FtM (Female vers Male): individu s'identifiant en tant qu'homme et a qui on a assigné "féminin" à la naissance.  ENGLISH VERS. I am Jim, a 23 years old FtM transgender. I am from France and I am studying management. I really love sailing and swimming. I would really love to love someone.The issue is, I cannot fulfill the last two statements.As a FtM transgender person, the disconfort I have towards my breast is increasing and I cannot think about practicing the sports I love anymore.Moreover, the following quote is completely accurate for me 'If you can't love yourself, how the hell are you gonna love somebody else?' (-RuPaul). I do not love my body because it isn't mine. I am a man and I crave for the body which will match who I really am. It has become unbearable and I cannot wait for the mammectomy to be done. By participating, no matter how much you will give, it will contribute to my journey to freedom and Life.I intend to be operated by one of the best surgeon in France for this operation. Before next year, I need to gather 5,000 euros to be eligible. This corresponds to approximatively £4,440 or $6,170. Help me making this year the last one to live like a caterpillar and the next one to transform myself into a beautiful and free butterfly.  Thank you so much! Have a wonderful day, evening, night. Jim Lurion VERSION FRANÇAISE : Je m'appelle Jim, j'ai 23 ans et je suis un homme transgenre. Je viens de France, de Bretagne plus précisément et j'étudie le management. J'adore vraiment faire de la voile et nager. J'aimerais beaucoup aimer quelqu'un. Le problème étant que je ne peux satisfaire ces deux dernières informations. En tant que personne transgenre, le malaise que je ressens concernant ma poitrine ne cesse d'augmenter et l'idée de pratiquer un des sports cités précédemment n'est même plus envisageable. De la même manière, voici une citation qui me correspond parfaitement : "Si tu ne peux t'aimer toi-même, comment es-tu supposé pouvoir aimer quelqu'un d'autre?" (-RuPaul). Je n'aime pas mon corps car ce n'est pas le mien. Je suis un homme et je ne rêve que d'une chose, c'est de voir mon corps être en adéquation avec qui je suis vraiment. S'est devenu insupportable et j'ai vraiment hâte que la mammectomie soit faite.En participant à cette cause, peu importe combien vous me donnerez, cela contribuera à mon long voyage vers la liberté et la Vie. J'ai l'intention de me faire opérer par l'un des meilleurs chirurgiens de France pour cette opération. Avant l'année prochaine, je devrai rassembler la somme de 5000 euros afin de pouvoir prétendre à l'opération. Cela correspond à environ 4440 livres ou encore 6170 dollars US. Aidez-moi à faire de cette année la dernière à vivre comme une petite chenille et l'année 2019 à me transformer en un beau papillon, libre.   Merci énormément! Je vous souhaite une excellente journée, soirée ou nuit. Jim Lurion

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