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Surgery for my pilonidal disease /  Chirurgie pour mon kyste pilonidal

Surgery for my pilonidal disease / Chirurgie pour mon kyste pilonidal

*FRANÇAIS PLUS BAS* Hello and thank you for your interest I am a 21 year old veterinary medicine student. I live in Estonia where I get to study for my dream job. Everything seemed perfect until one day I started to experience pain around my tailbone area.  I later got diagnosed with pilonidal disease. What is it all about? It is a pretty unknown disease that causes a lot of pain in the lives of those who have to face it. It is a cyst that develops in the sacrum/tailbone area and opens on the skin through pits and sinuses.Basically it prevents me from sitting too long, walking too much, swimming, wearing tight clothes. The worst part about it is that it can stay dormant for a very long time until it flares up, causing excruciating pain.  The only somewhat effective treatment against it is surgery. Unfortunately since the disease is very unknown, surgeons do not always know how to remove it properly, leading to reoccurrence of the cyst. If treated wrongly it will come back. Some people had to get between 20 and 60 surgeries... There is one very effective treatment method, but it is still very rare in Europe and costs a lot (Cleft Lift). It has a 98% success rate if performed by an experienced surgeon. It would get me free of it for good.I will most likely have to go to a specialist in the USA. After contacting the surgeon it appears that the surgery will cost, all included, 15 000 euros. I already have a loan for my studies and can't afford to pay the surgery. This disease is causing me a great deal of stress on top of everything and I am trying hard not to let it come in the way of my studies. I would be immensely grateful if you could help me go back to health. Thank you so much ! It means a lot ! FRANÇAIS Bonjour et merci pour votre intérêt  J'ai 21 ans et j'étudie la médecine vétérinaire. J'habite en Estonie où j'étudie pour atteindre mon métier de rêve. Tout semblait parfait jusqu'au jour où j'ai commencé à ressentir une douleur au niveau de mon coccyx. J'ai été diagnostiquée avec une maladie pilonidale. Qu'est ce que c'est ?  Il s'agit d'une maladie peu connue qui cause beaucoup de douleur dans le quotidien des personnes qui en sont touché. C'est un kyste qui se développe aux niveau du saccrum/coccyx et est relié à la peau par des trous (sinus). En gros, cela m'empêche de m'asseoir ou de marcher trop longtemps, de nager, de porter des vêtements serrés. Mais le pire reste le fait que cela peut rester en dormance très longtemps et se reveiller à n'importe quel moment. Le seul traitement plus ou moins efficace reste la chirurgie. Malheureusement comme cette maladie reste peu connue, les chirurgiens ne savent pas toujours le retirer de la bonne manière, causant la réapparition du kyste. Si il est mal traité, le kyste reviendra. Certaines personnes ont dû avoir entre 20 et 60 chirurgies. Il existe une méthode très efficace mais qui reste rare en Europe et très chère également (technique de Bascom/cleft lift). Elle a un taux de succès de 98% si réalisée par un chirurgien expérimenté.Je devrais très certainement aller aux états unis où exerce un spécialiste de cette maladie. Après avoir contacté le chirurgien il s'avère que le coût total s'élève à environ 15 000 euros. J'ai déjà un crédit pour mes études et je ne peux malheureusement pas payer cette chirurgie seule. Cette maladie cause énormément de stress en plus de tout le reste et j'essaie de ne pas la laisser affecter mes études. Je serais immensément reconnaissante si vous pouviez m'aider à retrouver la santé Merci infiniment !

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Bike 4 charity

Bike 4 charity

There are two reasons why I am raising this appeal in REVERSE order of importance:1. Red wine - which made me say yes to taking part in the challenge2. A visit to the children's dialysis unit in Leipzig's St George hospital Nr. 1: After quite a bit of good Italian red wine a former colleague mentioned in February that he will be cycling 900 km across the Alps: Venice - Leipzig in the summer. Due to the inebriation I must have looked keen to join because he signed me up. Given that I did not remember this the next morning gives you an idea how the evening went... However I am not one to go back on my word no matter the blood-alcohol level. Overall not a good reason to spend 7 days straight in the saddle of a road bike if you ask me however. Nr. 2: And this is a very good reason to spend several months getting up at 4:30 am to train - a visit to the childrens' dialysis station in Leipzig.These kids' kidneys have failed.They have to show up there 3-4 times a week.They have to spend around 3 hours hooked up to a machine that cleans their blood.Else, without a kidney donor, they cannot survive.Part of the fundraiser comes from our starting fees which cover a bit more than the bare necessities. However this is by far not enough! This is where your support is needed. Please consider donating however much you find appropriate. What will your donation be used for?As these children need to be on dialysis 3 times a week they can never really go on holiday - unless they go to a facility that has dialysis integrated.However such facilities are expensive. Moreover small children need the company of their parents. The German public health system does not fund the cost for parents though.We are planning to use the funds raised towards supporting families in need to visit the Ederhof - a beautiful homestead in the Alps that has purpose built facilities for dialysis patients and special care for children available.  -------------------------------------------------------------------------------------------------------------------  Disclaimer I: So far I have spent 2.700 km in the saddle and ridden 20.000 m of elevation gain. Will this be enough to get me across the finish line? I have no idea because I have never ridden for 7 days straight let alone through the Alps. However, whether I fail or succeed is of no consequence to the brave children in Leipzig. So please consider making a donation even though the outcome of this effort is uncertain. I will give it my very best shot and will keep you informed with complete honesty how it goes, that I can promise. Disclaimer II: The event is organized by Bike for Charity e.V. and funds raised will be donated to Förderkreis Kinderdialyse Leipzig e.V.. As leetchi is a third party, unfortunately donation receipts are not available. If you require a receipt for your tax refund, talk to me and I can provide the account details for the charity directly. In that case do not use this site to donate.

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POSTPARTUM .High risk preganancy of twins. 1 with Limb-Body Wall Complex

POSTPARTUM .High risk preganancy of twins. 1 with Limb-Body Wall Complex

I started this crowdfunding around 2 weeks ago for my cousinKenny and his wife but since then things has scale to a point where the situation has changed upside down as the cost as well. You'll see a video below with their testimony and as well the link to a blog where you canread it in Spanish, Arabic or French in case you want to share it with some one who can help but does not understand well English.List of events:Luisa (my cousin's wife) was pregnant of twins. They were supposed to be born around the first 2 week of Octuber One of the twins (Carlota) had a rare syndrome (Limb Body Wall Complex) so  she was completly deformed and due to her condition she was to die sooner or laterOn August 27th Luisa started dripping liquid... They when to emergency, doctors shotted her some meds to calm down contractions  as well they did some Labs. Carlota started dying  On August 30th the clinic confirmed that the mother was infected due to the dead fetus and the other twin, Angel Javier, was about to be infected too, so a emergency C-section was neededOn August 31st Carlota was born dead and Angel Javier alive but on the week 30th of gestion, he was still premature and Luisa has lost too much bloodOn September 2nd Angel Javier, sadly, died. He could not stand the neonatal unitMeanwhile all this events the cost from neonatal intensive care plus the constants transfusions plus the recovering has boosted incredibly the inictial budget.In order to solve out during the critical moments they have gotten huge debts. Still, to repay this debt is out of their hands. With an open heart we come to you all to ask for help during this hardship !!! May God bless you all!Informative blog multilingual:Español : https://lamouraxl.blogspot.com/2019/08/recolecta-para-kenny-y-luisa3.html                  Française : https://lamouraxl.blogspot.com/2019/08/demande-de-don-pour-kenny-et-luisa.htmlعربى https://lamouraxl.blogspot.com/2019/08/blog-post.html                                                       EN : https://lamouraxl.blogspot.com/2019/08/donation-request-for-kenny-and-luisa.html

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Help Aadya Fight Leigh Syndrome

Help Aadya Fight Leigh Syndrome

Help Aadya Fight Leigh Syndrome Thank you for visiting our page! We'd like to introduce you to our daughter,  Aadya.  She is a two and a half year old tyrant who will chat your ears off until she gets exactly what she wants. She is also a little girl with a terrible medical diagnosis. After a long diagnostic journey, earlier this year, we learnt that our daughter has a rare genetic neurodegenerative mitochondrial disease called Leigh's Syndrome that has no known cure. What this means is that the disease is caused by a defect in her genes,  affects all her major organs - especially the brain and nervous system and gets progressively worse with time. Doctors try to treat the symptoms rather than the disease itself. While it is often times deemed fatal, today, there is more information on kids surviving to their teens and beyond. For a child who met all her milestones and seemed to have a typical first year, Aadya presents a completely different picture today. Crawl. Sit-up. Stand / walk with support. Drink from a straw. These are all things she could once do with ease. These are all things she can no longer do. And these are all things we hope she will one day be able to do again. To this end, we've three goals that we hope this campaign can help us meet.Our first and most important goal is to help raise funds for a research study. The more we see the devastating effects of the disease on Aadya and other kids like her, the more we realize that just waiting for someone to rally around to one day find a cure for this disease is not something we can do. We owe it to Aadya and all kids like her to give it our best shot to help them not just manage this disease, but to beat it and thrive.  Today more than ever before, there is hope for a gene therapy based cure. So, 100% of funds collected will be given to researchers currently working on finding a cure for this disease. The research we're hoping to contribute to is slated to start in the University of Texas South Western located at Dallas, Texas. The research will be headed by Dr Berge Minassia  and Dr Steven Gray.

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Helfen Sie Teddy,um das Leben zurückzubringen

Helfen Sie Teddy,um das Leben zurückzubringen

Lassen Sie uns den Traum eines wunderbaren Ehemanns, eines Vaters, eines Sohns, eines Bruders, eines Freundes und eines Mannes schaffen, der nur um einen kämpft - um gesund zu sein!Zeigen wir, dass es Gutes gibt und wir zusammen stärker sind!Zu helfen heißt, Hoffnung zu geben!Glauben Sie, es ist nicht leicht, um Hilfe zu bitten, aber es geht um das Leben eines jungen Mannes, der mit " Unklare Thrombozytopenie " und einer niedrigen Thrombozytenzahl zu kämpfen hat. Ohne diese Zellen gerinnt das Blut nicht.Bitte lesen Sie die Geschichte von Theodor Ivanov Gospodinov, 35 Jahre alt, aus Stara Zagora. Teilen Sie die Geschichte weiter, um ihm zu helfen, vollständig zu leben!Im Sommer 2016 tauchten nach einer Pause am Meer blaue Flecken auf dem Körper auf. Es wurde auf eine infektiöse Station in Stara Zagora zur Überprüfung gerichtet. In den Tests waren die Proben negativ und wurden im Stara Zagora Hospital in die Hämatologie überführt. Bis 09.2016 wurde er dort behandelt.Im Jahr 10.2016 wurde er im National Hämatologie Center in Sofia, platziert, um die Diagnose festzulegen.In einer Biopsie wurden eine anfängliche Beeinträchtigung des Knochenmarks und eine Behandlung mit Kortikosteroidtherapie identifiziert.Nach fast zwei Jahren Kortikosteroiden, die anderen Organe und die Gewohnheit des Körpers an sich schädigten, dauerte es 24.07.2018, um die Milz zu entfernen, um die Lebensdauer, der dort produzierten Blutplättchen, zu verlängern. Nach der Spektomie erreichte die Zahl 900 und in der Urbazon-Behandlung erreichten diese Jahre ein Maximum von 80.Temperaturerhaltung, Thrombozytenabfall, Einnahme von Antibiotika… Die Ärzte haben Lungenentzündung angenommen, die anschließend abgelehnt wurde.Es gab eine Konsultation mit dem „Tokuda“ Krankenhaus in Sofia und die Verschreibung von "Revolide", um die Kortikosteroidaufnahme zu ersetzen.Am 1. November 2018 entdeckten Chirurgen nach starken Bauchschmerzen einen Thrombus, der den Dünndarm nekrotisiert hatte und die meisten von ihnen entfernen musste.Nach 10 Tagen im medikamentöse Koma gelang es den Ärzten, seinen Zustand zu stabilisieren, aber nur für kurze Zeit.Sie haben Teddy am 05.12.2018 mit atrophierten Gliedmaßenmuskeln entlasst und am 23.12.2018 ihn im Krankenhaus mit Dringlichkeit, mit geringen Mengen an Hämoglobin und Blutplättchen wieder aufgenommen. In Blutuntersuchungen waren Hämoglobin und Blutplättchen sehr niedrig. Diese Indikatoren wiesen innere Blutungen nach. Am 31.12. 2018 brach er in den Händen seiner Familie zusammen und wurde dringend in der Intensivstation aufgenommen. Aufgrund starker Blutungen war am 03.01.2019 eine neue lebensrettende Operation erforderlich.Die Ärzte waren nicht sicher, ob Teddy aufgrund der ständig abnehmenden Thrombozytenzahl, des Hämoglobinspiegels, des niedrigen Blutdrucks und eines langsamen Pulses einem chirurgischen Eingriff überleben konnte.Die vier Stunden dauernde lebensrettende Operation wurde dank der professionellen Erfahrung vom Arztteam und dem starken Lebenswillen des Teddys erfolgreich abgeschlossen.Wir blieben in der Hoffnung, dass alles Schlechte bereits vorbei war und Blutungen gemeistert wurden.Einen Tag später begann er wieder zu bluten und dann organisierten wir ein Blutspendeaktion  „Blut spenden, Leben retten”. Das war notwendig wegen der ständigen Transfusion von Bioprodukten.Wir danken allen Menschen, die auf unseren Hilferuf reagiert haben, und machen dies vorbehaltslos weiter!Wir haben vom 1. November bis 15. Januar etwa 100 Blutspender zur Verfügung gestellt, die wir herzlich bedanken!Nur für die letzte Operation vom 31.12.18 bis 11.01.19 war 14.337 ml. Erythrozytenkonzentrat, 8730 ml. Plasma und 55 Plättcheneinheiten übertragen.Aufgrund der niedrigen Thrombozytenzahlen gab es viele peripheren Blutungen, die 3 Fläschen "Novoseen" injiziert werden mussten, um Teddy’s Zustand zu verbessern.Er wurde aus der Intensivstation übernommen und in eine Chirurgie gebracht, aber er blutete immer noch. Die Ärtzte halten den Zustand wie

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