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Sophias treatment.

Sophia had her first seizure at 5 weeks old and was diagnosed with epilepsy at 6 weeks old. She has had so many blood tests, a lumbar puncture, MRI, ECG, EEG scans and more. On her 6 week birthday we saw our baby girl being sedated so she could have an MRI scan to check there was no brain damage. Thankfully there isn't. At 4 months we were in hospital for 2 weeks due to the number of seizures she was having, resulting in her being too tired and weak to feed. We left hospital with Sophia being so weak she could no longer hold her head up unaided, she was so unhappy and spent most of the days sleeping. At 9 months we got Sophia's genetic results back and unfortunately she has a refractory genetic epilepsy with a mutation of the SCN8A gene resulting in delayed development. We have been told she may never walk or talk. She has just turned 1 and is still unable to sit unaided, walking and talking is still unknown.  We want Sophia to have the best chance possible at having some sort of 'normal' life and need to give her care and treatment to push her and help her development. This isn't cheap, we have already spent nearly £2,000 on treatment and need her to have more. If you have read this and want to help we appreciate every single penny donated to help Sophia to develop as much as possible. Thank you,Anna and Marcus X Click to make a contribution.* Give however much you want.* All payments are secureThank you!

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Svenja’s UTMB Fundraiser

The Race That Counts A famous ultra runner once said to me “you have to go for the race that counts”.  Two years ago, on a holiday in France, I found that race – the UTMB (Ultra-Trail du Mont-Blanc).  171km and 10,300 metres of ascent (and descent – there aren’t many flat parts on this run!), 46.5 hours cut off time and two nights of running, following the Tour de Mont-Blanc hiking path through the Alps in France, Italy and Switzerland.  * 2 years of preparation* Over 2,000 training miles* 4 qualifying races (1x50 miles, 2x100 miles and 1x110 miles)* And many glasses of wine I had to say no to! And I now have a place in the UTMB 2018! :-) I decided to run the race for charity. The race means everything to me but running it for charity makes it so much more important. Please support me and the two amazing organisations I am raising funds for: * The Motor Neurone Disease Association - this is for my dear friend Mike Crisp and his family. Mike – you are one of the bravest people I know. I admire how you embrace life. * The Ultra Sports Science Foundation – they do some fantastic research for the very sport I love and they are the organisation that is giving me the place in the UTMB. Thank you.  Now all I have to do is train for the race…  Thank you for your support!  Svenja

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Community Safety Patrols

Community Safety Patrols

Welcome to the Oadby Watch money pot. First of all, we'd like to thank everyone for joining and participating in our fast-growing community. Your participation contributes to the efforts in keeping our community safe and reduce crime by keeping everyone informed of what's going on in the area. As a community, our key objectives are, * To reduce crime - by improving security, increasing vigilance, creating and maintaining a caring community, reducing opportunities for crime and increasing crime prevention awareness.* To assist the Police in detecting crime - by promoting effective communication and the prompt reporting of suspicious and criminal activity.* To reduce the fear of crime - by providing accurate information about risks, and by promoting a sense of security and community spirit, particularly amongst those most at risk.* To improve police/community liaison - by providing effective means to notify co-ordinators and key contacts of local crime trends, and by members advising the police of incidents when they occur.In the past month, we have, * Increased Police and Community collaboration* Committed to the safety and security of the area by performing regular patrols* Created a forum (Telegram Messenger) for easy communication to help everyone* Set up an intelligence database to record suspicious activities and reports to 101* Purchased Neighbourhood Watch signs and attached them to 25 locations around the area* Purchased Hi-Vis jackets for residents on patrolTo further bolster the tremendous efforts, we are now requesting an investment to fund the following equipment, * Neighbourhood Watch signs - already attached to lamposts around the area* High-visibility jackets - used by residents on patrol* Custom metal Oadby Watch signs - a visual deterrent to anyone seeking to commit crime in the areaPlease take a look at the updates below for a breakdown of the donations and spend to date, CLICK TO VIEW RECEIPTS HERE Thank you, Oadby Watch Admin Group

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Kasia's Wake Up Call

Kasia's Wake Up Call

Lovely generous people! Welcome to our money pot for Kasia's recovery and treatments.With the humour Kasia's is famous for we called it "Wake Up Call" because this is what we need her to do: WAKE UP!  And we hope that with your help she soon will.  Our friend had a brain stroke while in Poland to visit her family during Easter holidays. She was supposed to be back in Iceland where she was happily living with her wife to be Anabel, and about to start a degree in Photography, instead she is still in Plock (Poland), lying unconscious in a hospital bed.(the image you see is part of her portfolio https://www.banaszekatarzyna.com/solitude she was about to exhibit in Reykjavick shortly).  All of her friends from different parts of Europe are mobilizing themselves in order to collect money and support to help Kasia's family paying for rehabilitation care so deeply needed by Kasia after the extensive stroke.  The haemorrhage in her brain might have caused damages that we still don't know and won't until she wakes up and therefore is vital for us to do anything we can to make this happen as soon as possible.  She has been operated on and although she has been taken off the danger list, her chances of coming back to full strenghts are slim if we don't do something. Fast.  Kasia is so many things for so many people. For Anable is the person she thought of marrying in a few months and that now is the reason why she is back in Iceland to press delete on their life to move back to Poland to deal with this tragic event. For us friends, acquaintances spread amongst England, Poland and Iceland Kasia is a beautiful soul, generous person, talented photographer and funny funny funny 26 years old girl who just does not deserve this.  YEAR OF TREATMENT COSTS ABOUT £70,000. IN KASIA'S CASE WE NEED TO COVER SEVERAL YEARS, SO DON'T BE SHY ;)!  From Kasia's website : )  In 2010 I finished Public High School in my hometown Plock in Poland. In 2012 I started to study photography in two-year art school but I don't have higher education after that. But I've got a diploma!​When it comes to photography jobs- my biggest achievement is working as a photographer shooting packshots in online sex shop called (in translation) "Island of Pleasure". Other then this wonderful thing I did some time in a little marketing agency as a photographer for everything. Later I was forced to change profession and I became some kind of manager in a bakery shop but I was the only one working there.​​Since July 2016 I'm living on Iceland and couldn't be happier.   Thank you to everyone who will contribute, share, talk or think about our lovely Kasia.   Peace out!

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Support These Wonderful Birds

Support These Wonderful Birds

Support the Eagle Club of Estonia and help protect these wonderful birds!* Give however much you want* All payments are 100% secure The Eagle Club of Estonia (Kotkaklubi) is a non-governmental organisation whose members have studied, observed and protected black storks, white tailed eagles, spotted eagles, ospreys, golden eagles and many more species for decades. Currently, the Eagle Club comprises 26 members. They include specialists in ornithology and nature conservation, foresters, and enthusiasts of nature and bird protection. Their primary objective is to guarantee the survival of endangered birds.http://www.kotkas.ee/en Kotkaklubi promotes the principles of nature-friendly management of forests and agriculture. They also ring juvenile birds, place transmitters on several young and adult birds, build artificial nest platforms if needed, and take care of injured animals. In order to increase public awareness, they installed webcams and microphones on various nests. The Eagle Club has an ever-growing fan club for these webcams, and every year new people from all over the world join the ranks of observers. Always with the aim to transmit better images and sound to all of us, the Eagle Club pays a lot of attention to the quality of those cameras.http://www.looduskalender.ee/forum/ All activities of the Eagle Club are voluntary, so they depend on the financial support of many projects and the donations of various organisations and private persons. Unfortunately, this support does not include some very necessary expenses.Currently, the Eagle Club is looking for support to their webcams.The regular replacement of components of the equipment needed to broadcast images is a cost that is not yet sponsored. In order to help the Eagle Club, we – forum members Jo, Anne and Kaori – decided to start this fundraising. We had the idea to write – and illustrate – a popular, yet factual book about the life of a black stork named Karl, a fascinating bird you can currently observe here:http://www.looduskalender.ee/forum/viewtopic.php?f=2&t=924 We have put a lot of love, time and energy into this book. A test-reader said: “It is a well-written story full of adventure, interesting facts and lovely illustrations.”We really hope you will enjoy it too!    Many thanks! Small Print: For ease of administration, our fund-raising website is being organised by a member of the support group, Josephine Coleman, who will receive any funds on behalf of the project. The accounting will be overseen by two witnesses.

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Un nouveau fauteuil pour une nouvelle vie !

Un nouveau fauteuil pour une nouvelle vie !

Bonjour ou bonsoir à tous ! Je m'appelle Camille, et malgré mon prénom très connu, je ne suis pas banale ! Depuis toujours, je dois me déplacer en fauteuil roulant, ce qui ne me rend pas malheureuse, vraiment ! Et ne m'empêche pas d'être une petite globe trotteuse à roulettes :) Canada, Angleterre, châteaux, montagnes, Alsace, campagne, Suisse, Italie, Espagne, Portugal, pistes cyclables, salons automobile, Supercross, musées, expos, tout me va ! Depuis très longtemps, j'envisage de partir vivre et travailler quelques temps à l'étranger, en Angleterre plus particulièrement!Seulement voilà, une chose m'handicape pour de vrai cette fois-ci : j'ai besoin d'un nouveau fauteuil roulant plus fiable, moins vieux, pour continuer mon chemin tout droit vers l'aventure et l'indépendance. L'acquisition de nouvelles jambes est très coûteuse. Cela va faire un an que je suis en pleines démarches pour un soutien financier... qui ne comprend souvent qu'un tiers du prix d'origine de mon fauteuil et du matériel nécessaire à mes capacités motrices : 3444 euros.  Il me restera environ 2000 euros à verser d'ici quelques semaines, et il m'est impossible de faire cela toute seule... Je crois profondément en la générosité humaine et c'est pourquoi je vous demande votre aide !  2 euros + 2 euros = mon éternelle gratitude, et, si vous me donnez votre adresse, une jolie carte postale (ou virtuelle, comme vous préférez) personnalisée de mon fauteuil et moi en pleine vadrouille! Nous voyagerons ensemble :) Je vous remercie d'avance pour votre solidarité !Je vous embrasse aussi 😚

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The Letchworth Garden City Home Education Hub

The Letchworth Garden City Home Education Hub

Welcome to the LGCHE HUB 1 year Venue Hire Fundraiser!Click to make a contribution.* Make a min donation of £16.35.* All payments are secure Welcome! Did you know that in the UK parents have the legal choice between choosing to have their children educated in a school or at home? Did you also know that parents that exercise this right get absolutely no financial support? Yes...it's true. The reasons for choosing to home educate are very varied. There are families who have children with special educational needs (SEN), children who have struggled in school due to social problems, emotional and academic needs not being met, religious reasons, or just because it’s the right choice for the individual child and family’s needs, learning abilities and lifestyle. Styles of home education are also as varied as the reasons for home educating. These range from following the UK government curriculum, to other educational styles like Montessori or Steiner, which are accredited, private school methods of teaching. Or a mix of different styles adapted to suit the individual child. The problem is, that those who home educate do not get any government funding or financial help, despite the fact they actually save the government money by providing an education for their children themselves. This means that home education communities are often very supportive of each other and Hertfordshire and Bedfordshire are two of the UKs busiest and biggest home education communities. The Letchworth Garden City Home Education Hub is a group of local home educators based in Letchworth Garden City, Hertfordshire UK that need your help. LGCHE HUB is a place where parents can meet and support each other, where children can make friends, where parents can share resources and ideas, run educational and skill base workshops that will support local home educated children. There are presently no groups in our local area that support Home Educated children's needs, Home Educators, or parents considering this choice for their children especially in the early years. We need you to help change this! All our activities will be supported by parents taking their turn each week to volunteer their time/skills/resources when they can to ensure our Hub's content. We need 100 payments of £16.35 to cover our venue rental charge for 1 year, can you help us? We desperately need your help to secure a space where Home Educated Children can be supported in the way they have the right to be. Please share this with your friends family. Thank you for your time. (Min donation of £16.35.)  MAKE A DONATION AS A HOME EDUCATOR: (Member Donation)Anyone that will be, considering too, or just would like to visit on occasion as they hold a Home Education interest and think they would like to attend either once in a while, once a month or once a week is considered a member. Receive a 100% free family entry pass to LGCHE HUB for 1 year (until our Christmas holiday closing date Friday 23rd November 2018) and enjoy free fun activities & workshops every week for all the family. (Min donation of £16.35.) MAKE A DONATION AS A HOME EDUCATOR: (None Member Donation)Anyone that is a home educator that cannot attend but would like to support this cause is considered a non member donator. Your support is greatly appreciated. We really can't thank you enough! The home educators of our little community in Letchworth welcome all support from our U.K H.E. Community and beyond,  together planting  more positive flags for Home Education.(Min donation of £16.35.) MAKE A DONATION AS PRIVATE DONATOR/BUSINESS/ORGANISATION:Any member of the public wishing to make a donation to support LGCHE HUB is considered a private donator.(Min donation of £16.35.) £532.76 has been paid to our venueWe need just 23 payment s of £16.35 to meet our target so please keep supporting!

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Fundraising to Battle Cancer!

Fundraising to Battle Cancer!

Life can be dreafully unfair sometimes. If you have not read this sponsorship page before, please see our letter to cancer which explains why we are fundraising...  However since launching this page, we have been told about an incredible lady, called Jenny, who has been dealt the cruelest of hands.  So we are dedicating our event to Jenny, asking for more donations, and sharing those donations across our cancer charities and into Jenny's daughter fundraising page. Jenny is 35 (younger than all of us), she has three daughters 6 and under.  She also gave birth to a son, Elliott, in Great Ormond Street, he died aged 10 days old. I'd say that sentence alone means she has faced massively more than her fair share of hardship; but on June 5th this year, Jenny was diagnosed with an aggressive adenocarcinoma of the lower bowel. The consultants say she has 18 months with treatment, 9 months without. Let that sink in. It is agonising. In her lifetime, Jenny has raised over £70k to provide a pallative care room in GOSH for PICU and NICU. Terrible things seem to happen to shining stars of the world. Jenny's eldest daughter, Nia, before her Mummys diagnosis, was starting to grow her hair for the Little Princess Trust, what an inspiration.  They are now raising money for Bowel Cancer UK - and I just hope we can add a little a bit more to that fund. Stories like this remind you to squeeze every second out of life, always choose to do the right thing, and love those you love with a passion that burns... Our hearts break for Jenny and her family, and we will be thinking of you as hopefully we raise some awareness and money. Thanks for reading this update - see below for our orginal letter to Cancer - but know we are even more pissed off with this cruel condition than ever before......  Dear Cancer, We are four, forty something year old women. In our chosen sport, we are called Masters.... In our peer groups, we are called friends, mums, or the mad dog lady. We met only last year, two pairs who quickly discovered we were actually meant to be a foursome. And then a plan formed. You see, we are at an age where we have watched friends battle you, seen loved ones die at your hand.  We have checked our breasts, had them squashed in a machine to ensure you aren't living in our body.   We go for smears, we take the vitamins, we try not to be one of the unlucky ones. We cry when friends are diagnosed, and we shout at the injustice of the condition. And we burpee, and we lift weights, and we pretend to be gymnasts. In October, we are going to do it together, in a team of four, where we will be part of an event designed to battle you. BATTLE CANCER With a combined age of over 170 we will compete against many half our age.  Just because we can. We will train harder than before and compete stronger. Just because we can, And because we want to raise money. Money for a cure, money for research, money to battle cancer! Because we are sick of you in our life. We are splitting the money over several cancer charities close to our hearts.  But all money can be donated via this money pot and then split between Bowel Cancer UK, Weston Park Hospital,  Macmillian and the Willows Foundation. Cancer, we are doing something to try and stop you. Friends and families - please donate - even a pound can help? And Cancer, because we can laugh in the face of adveristy. Because no matter how hard you attack us, we will continue to fight, we pledge that the moment we raise over £650 we will do one of the workouts in Unicorn Leotards. Because we can! Love, Simone, Jo, Jane & Mel. xxx   Hello everyone & welcome to this money pot!With just 1-click you can donate to a good cause* Give however much you want* All payments are 100% secure* Why Leetchi.com? It's easy & transparent!Thank you!

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Global Nomad - Mongol Rally

Global Nomad - Mongol Rally

Welcome Friends ,As a participant in the Mongol Rally we are raising money for Charity to be donated to Human Hope Foundation and Cool Earth. -------------------------------------------------------------------------------------------------------------------Human Hope Foundation It is a professionally run Non Government Organisation (NGO) which aims to adopt a comprehensive approach to address the various issues faced by the underprivileged. Our comprehensive approach includes Remedial Education, Livelihood opportunities to the underprivileged.In future we would like to provide the underprivileged access to Financial Instruments, Better Healthcare, Sanitation and also plan to have chapters on Water conservation, Environmental and Youth related issues. http://www.humanhopefoundation.ngo -------------------------------------------------------------------------------------------------------------------Cool Earth Cool Earth is a Non Profit Organization that works alongside Rainforest Communities to halt Deforestation and its impact on Climate Change. Cool Earth works alongside the local people to build better health, better education and better livelihoods to create resilient and empowered villages. https://www.coolearth.org ------------------------------------------------------------------------------------------------------------------- Your generous donations to support the cause will be highly appreciated. Thank you! Phan Lai and Saket

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Remember the Great War Dead Fulflood & Weeke

Remember the Great War Dead Fulflood & Weeke

Welcome to the Winchester Great War Dead Fulflood & Weeke Project Men of the 1st Hampshires in Ploegsteert (Plugstreet) Wood, Flanders, during the winter of 1914-15  November 11, 2018 will mark the centenary of the Armistice that finally silenced the guns in the Great War. Up and down the country, in what will undoubtedly be deeply poignant commemorative services, communities will remember the hundreds of thousands of soldiers, sailors and airmen who died in a conflict that is still etched on our national psyche. Fulflood and Weeke in Winchester will be no exception. The churches of St. Paul and St. Matthew contain memorials to no fewer than 91 men from the parish who went off to war never to return and they will be remembered at services in November. Although these men died more than a century ago their stories are only now being retold thanks to the efforts of a local research group. Over the past three years the researchers have worked to build up a picture of the lives of the parish’s war dead – where they lived and worked, where they went to school, their families, and, of course, where they fought and died. The stories we have glimpsed have been moving and fascinating. Young men from the streets of Fulflood, Weeke and elsewhere in Winchester went to fight and die not only on the Western Front but also at Gallipoli, Mesopotamia (modern Iraq) and even Russia. Winchester, of course, was a garrison town so many joined those regiments based here – the Hampshire Regiment, the Rifle Brigade and the King’s Royal Rifle Corps. Others served in the Royal Navy and the fledgling air force. Men from Canada, Australia, New Zealand and East Africa with family connections in the parish, volunteered to fight for the “Mother Country” and their names are remembered on the memorials. One of these men had been on Captain Scott’s final expedition to Antarctica in 1912 and was to die in a German prisoner-of-war camp. Many schools where the men went to are still here. Several went as infants to Western School, then in Elm Rd, and onto St. Thomas School in Mews Lane, which was eventually amalgamated into Kings’ School. There, they are remembered on the St. Thomas School Memorial Board. Some went onto Peter Symond’s Grammar School, now the Sixth Form College, and they too have a memorial board. Some went to prep schools and onto public schools such as Winchester College where they are also remembered. Some schools they attended no longer exist, for example, St. Peter’s in Chesil Street - but their records do. The time has now come to make their stories accessible to all interested people and aspects of this will take money!  With just 1-click you can donate to this cause on the Contribute button on the right side of this page. * The most expensive item will be to publish a book of their stories which we aim to have available by Remembrance Sunday, on the 11th November this year.* We also plan to have portable permanent exhibition boards which can be displayed in:* St. Mathew’s and St. Paul’s, the churches of the parish of Fulflood & Weeke.* Local schools* Hampshire Record Office & the Discovery Centre* Community halls* Relevant military museums & local military bases* Creation of a website with all the information on it which will have an element of interrogation for example, do any of the men live in your street?* We hope further that:* Teaching resources will be created in liaison with local schools. Many current pupils in Winchester, especially at Western, Westgate and Peter Symmond's, may live in houses that were once the homes of these men.* A programme of Public Lectures & Guided Tours will happen.Long-term, we also hope to tell the stories of all the men who went to fight in World Wars I & II but that is not part of the current project. Thank you for reading this page and we do hope that you find this a worthwhile cause to contribute to.You can further help if you think you are related to any of the men and even have relevant photographs. A

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Love2Lexy

Love2Lexy

Hello and thanks for coming by. My name is Lexy, and the adorable pup by my side 24/7 is Jaxx.  About three years ago I was diagnosed with a rare genetic condition, called Ehlers Danlos Syndrome. I have the most common type of Hypermobile EDS. It's a horrible, multi-systemic condition that wreaks havoc on the sufferer, and can affect any number of things throughout the body. For me, personally, I experience a lot of pain and joint subluxations (partial dislocations) and often, full dislocations.  While living in the US I had sought treatment to find out why my neck was so constantly painful, why I had trouble supporting my head upright, and why I almost constantly had a headache, that was only relieved by laying down. While in the Us, I was also diagnosed with Postural orthostatic tachycardia syndrome, Chiari malformation and we still suspect Mast Cell activation syndrome.  With few answers, and a need to return home and escape my troubled marriage, I left the US. Upon returning home, shortly before Christmas, I started slipping in and out of consciousness. It was so quick and successive that I was unable to tell anyone what was happening or reach out for help. My blood pressure was tanking but we did not know why. I sought answers from doctors, neurologists and neurosurgeon team at Queen's square, I was sent for a supine MRI upon which they told me that I did have Chiari but that it was ''not symptomatic'' because of it's size.  Initially, I accepted these answers, why would they not be correct? But my condition declined further and after an incident with my University bed collapsing, I was left unable to lift my head from my pillow due to extreme pain and dizziness. I almost missed Christmas with my family as I was unable to travel for a two week period leading up to Christmas day.  I was frustrated and desperate to know what was going on. I emailed a doctor in Spain, a specialist within our EDS community and found the price for a consultation. In between raising that money and sending my imaging off, I started falling unconscious when lowering my head down. I attended the A&E in Barnet, where I was discharged because they couldn't work out why this was happening.  By the time I sent my images and received my report, my speech was impaired, fatigue was running rampant, and the period of time in which I can remain upright has greatly lessened (about two hours at a time without a break). My gait, breathing and eyesight are all impaired, sporadically too.  I opened the report expecting a few levels of my neck needing to be fused, what I read was shocking. My neck is very unstable, I have little to no spinal fluid flow. I was diagnosed with Chiari malformation and recommended a decompression surgery for those symptoms and the csf flow, Cervical cranial instability and Antalo-axial instability. What this means for me is that I need my whole neck fused, hard.  On the 8th of July I flew out, accompanied by my best friend, to Barcelona to have further imaging and meet with my surgeon. It was confirmed that I do need these surgeries urgently, or I will simply continue to decline at the rapid rate I have been.  I have been given a rough estimate of 50,000 gbp, and understandable, this isn't change I can grab from the sofa cushions, I need help to save my life. That isn't easy to say. Things have deteriorated rapidly since the bed incident, slipping in and out of conciousness, I lost control of my bladder and my spo2 stats drop frequently to below 90. I am terrified of how far I can decline, and what my body can come back from.  So please, if you have anything to spare, please consider helping.  Frequently asked questions: - Why wont the NHS fund this - The NHS have a few reasons, the first is that they don't like operating on people with connective tissue issues, due to the potential complications and risks we pose. They also dispute, despite numerous success stories, that the surgery is beneficial. They don't have a surgeon qualified

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