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Sickle Cell Disease Association of America

Sickle Cell Disease Association of America


Close the gap

With a few clicks, you can help ensure those suffering from Sickle Cell Disease (SCD) are no longer left behind.

Why

The Cystic Fibrosis Foundation (CFF) has had phenomenal success improving the lives of the 90,000 people globally living with Cystic Fibrosis (CF). Having pioneered the application of venture philanthropy to medical research, CFF has increased the median expected lifespan of those born with CF by more than order of magnitude over the last 40 years. It is an incredibly inspirational story that is told well in Breath from Salt.

However, while the lives of those with CF have greatly improved, those with other rare diseases have not seen similar gains. Sickle Cell Disease (SCD) is a shocking example. SCD is a genetic condition that is so painful that adults living with SCD are often unable to work and are dependent on others for care. Less than 5,000 people are born with CF globally each year but 300,000 are born with SCD annually. Yet funding to fight SCD is an order of magnitude lower per person in the US and this discrepancy is likely larger on a global basis.

Since 1971, the Sickle Cell Disease Association of America has been advocating for those living with SCD.

What our donation will do:

  • Provide support services for those living with SCD in the US
  • Improve the standard of care for SCD globally
  • Fund research to develop treatment options and find a universal cure

Target: $2000

€120 Collected out of €2,000

6%
0 Day left
3 Contributions

Organiser

Lleonart Calvo Marina

Profile verified

Beneficiary

Sickle Cell Disease Association of America