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In Loving Memory of Alice - Support Research on Medulloblastoma

Organised for: Centre de Recherche sur les Tumeurs de l'Enfant - Hospital Gustave Roussy

ALICE STORY

 

In October 2018, our life took a huge turn as our daughter Alice was diagnosed with a Medulloblastoma, a brain tumour, just before her 3rd birthday.

 

It's been the start of a long and intensive journey between London and Paris, where Alice never stopped fighting and always kept her smile despite spending most of her time in hospitals separated from her twin sister Judith for more than 7 months.

 

5 Surgeries, 5 chemotherapy, 2 high dose chemotherapy with stem cells rescue and hours and hours of rehabilitation to learn how to walk again as she completely lost control of her legs and left arm after the first surgery to remove the tumour.

 

And she succeeded, the treatment was working and at the beginning of the year she was in early remission. She even started to walk again, and to use her left hand like a normal little girl.

 

But these tumours are aggressive and we had to carry on with the treatment to avoid a relapse. One last chemo before she starts radiotherapy.

Unfortunately, her body couldn't accept it anymore, she was exhausted and it was just too much for her. 

She won the battle against cancer but lost the one against the violence of the treatment. 

 

Alice left this world on the 12th of May 2019.

 

 

RESEARCH PROJECTS WE WANT TO SUPPORT

 

As we are trying to give a sense to Alice fight, we have decided to support research on Medulloblastoma led by Gustave Roussy Hospital in France where Alice was treated.

 

Gustave Roussy is coordinating all the treatments at European level for this type of cancer and have some of the best results in the world.

 

The research projects are the following :

 

  • Multi-scale analysis in childhood medulloblastoma
  • Neurocognitive risks in children with solid tumor
  • Pharmacogenetic markers for prediction toxicity in childhood medulloblastoma therapy
  • Relapsed childhood medulloblastoma

 

All the donations will be transferred to the "Centre de Recherches sur les Tumeurs de l'Enfant" of Gustave Roussy and specifically allocated to these projects that are really important for us today and help us to keep Alice memory alive.

 

 

Thank you for your support, yesterday, today and tomorrow.

 

In loving memory of Alice.

 

 

Organised by

Alexandre Campargue

Barry Donlon contributed £500

Ed Mulderrig contributed £350

Thomas Fraher and Valerie Albanese-Fraher contributed

Till Zuehlsdorff contributed

David Slade contributed £500

Edward Ninham contributed £75

Lise Thomas contributed £100

Michael Grieci contributed

Luca Ferrante Carrante contributed

Philippine Ballu contributed £100

Virgile Faro contributed £75

dan lavers contributed

Nick Lewis contributed £100

N J Darrant contributed £100

Robin Palmer contributed £200

Nigel Howells contributed £400

Armin Peter contributed £500

Dominic Malouf contributed £50

Sukhy Kaur contributed £100

Jean-David Tzidikmann contributed

Richard Bärlocher contributed £100

Victoria van Tets contributed £100

Ranko Milic contributed £200

Nick Kalisperis contributed £50

4 July 2019
Armin Peter
There is only one Tiger....
3 July 2019
Florian Hessel
Think it's great you're doing this!
3 July 2019
Kelly Holloway
Sending love and hugs xxx
3 July 2019
Marie-Julie VEZINHET
Plein de pensées pour toi Alexandre, pour Judith et sa maman, et pour la jolie et courageuse Alice. Xxx
2 July 2019
Amaury Foissac
Courage à vous trois. Je pense à vous